Project Aims
The aim of the UNITE project is to develop a core (minimum) set of clinically relevant lung cancer rehabilitation outcomes and measurement instruments for use in clinical practice which are important to all stakeholders; patients and caregivers, healthcare professionals and clinician researchers.
You are eligible to participate if you are a:
Person with personal experience of lung cancer, for example, patients and carers
Healthcare professional (e.g., physiotherapists, exercise physiologists) with expertise in treating and caring for people with lung cancer
Researcher with expertise in lung cancer rehabilitation
Who can participate?
In this project we are developing the core outcome set using a Delphi study. In a Delphi study the project team identify groups of people who are experts in the health condition they are interested in.
Should you agree to participate you can access the survey here: survey.
You will be asked to complete up to three, 10-minute surveys (several weeks apart). We may contact you about participating in a 1-hour online meeting at the end of the survey rounds, although you do not have to attend if you do not want to.
What does participation involve?
The short video below provides some further details for consumers of study involvement:
The Core Outcome Measures in Effectiveness Trials (COMET) Initiative and consumer advocates have produced a series of short videos if you would like to learn more about the development of core outcome sets:
Core outcome set development
The UNITE Lung Cancer Rehabilitation Core Outcome Set project is registered with the COMET Initiative:
https://www.comet-initiative.org/Studies/Details/2086
Project registration